• I was predisposed to like Judith Warner’s new book, We’ve Got Issues: Children and Parents in the Age of Medication (New York: Riverhead Books, 2010). I read it and had a visceral, negative reaction. I couldn’t put my finger on what bugged me. Two weeks passed, and I still couldn’t sort out my thoughts. I sat down with the book again yesterday, and now I can explain.

    Like the more than 60 families Warner interviewed in We’ve Got Issues, my family has children who have needed medication.  I, like so many of these parents, have struggled to come to terms with the implications of medicating kids for diagnoses that 30 years ago would have gone unseen, let alone untreated. In fact, they did go unseen and undiagnosed in my extended family, and the attendant wreckage and dysfunction have been profound. My mantra concerning medicating children for mental illness has evolved to this: it is far scarier to contemplate what things will be like if the meds don’t work than if they do. Hence my predisposition to read Warner’s book with a favorable eye.

    We’ve Got Issues is a combination conversion narrative, memoir, and reportorial expose.  I wasn’t sure how I felt about Warner situating herself at the center of the book, but I thought I understood the strategy.  She was outing herself as a card-carrying member of the opposition, one of the judgmental parents certain that kids these days are helpless pawns. Warner started her project, originally called UNTITLED on Affluent Parents and Neurotic Kids, ready to lambaste “the whole archipelago of therapy and tutoring and labeling and medication” (7). She was prepared to delve into the “social construction of disease,” assuming that overly anxious, ambitious parents were incapable of accepting their children’s imperfections and therefore labelling less-than-perfect behaviors as pathologies.  She was set to dine out on stories about the way Big Pharma fed these anxieties, making gazillions shoveling anti-depressants and untested anti-psychotics into the mouths of babes.  Warner stepped out of her comfort zone to attend a meeting billed as “Should I Worry?” The stories she heard at this meeting in a church basement made it difficult and eventually impossible for her to continue with her stated project. Here were parents describing interactions with out-of-control children who were destined for disaster. Diagnosis, treatment, and medication were saving lives.

    Warner’s conversion moment came when she encountered a sentence the left-leaning French philosopher Jean-Paul Sartre had penned: “Mental illness is the revolt that the free organism in its total entity invents in order to live in an unbearable situation.” She confessed that she’d been inhaling these kinds of ideas for decades:  ”‘Theory’ was like a religion to me” (25). It was time, she decided, to grow up. How could she swallow theory whole when the concrete experience of suffering precluded the validity of the musings of Lacanians and deconstructionists and Marxists? The theorists were engaging in “foolish, inhuman, cruel” thinking, leading her to “deconsruct kids’ diagnoses by analyzing them symbolically” (27). She stopped bashing psychiatrists and started listening to families in the trenches, and she hoped that others sympathetic to left-leaning cultural criticism would join her in her new religious affiliation.  She also hoped that families living through what she was describing would find solace, validation, even community in her book.

    Other reviewers have taken Warner to task for her approach. Did she, in fact, have this come-to-Jesus moment, or was the conversion merely a brilliant marketing strategy?  If Warner cared so much about evidence, why did she focus narrowly on family stories instead of digesting scientific research?  You can click here, here, here, and here for generally favorable summaries and reviews.

    So, why my hesitation in giving Warner kudos? What’s holding me back, given the fierce struggles my husband and I have fought to help our families? As she set out her research methods, Warner explained that she had interviewed “psychiatrists, psychologists, parents of kids with autism, Asperger’s, ADHD, anxiety disorders, OCD, bipolar disorder, dyspraxia, dyslexia, and sensory integration issues — in short, the range of disorders that I had once dismissed as ‘fashionable maladies.’ (And that I will, from here on, refer to as ‘mental disorders,’ ‘mental health disorders,’ ‘mental health issues,’ or ‘mental illnesses’” (27-28). She makes this elision again on pages 35-37.  Since when has “dyslexia” — an umbrella term covering difficulties with decoding, fluency, and spelling written language — been considered a mental illness? And though ADD and AD/HD were, in the dark ages, referred to as “minimal brain damage,” scientists these days think of this condition as a brain difference and a learning disorder.  Dyspraxia — a neuromuscular problem — a mental illness? Come on!

    It’s true that cutting edge researchers are exploring whether many of these conditions are “spectrum disorders.” That is to say, scientists wonder whether there is a genetic relationship between, for instance, ADHD, OCD, bipolar disorder, and schizophrenia.  Families with members who have any of these syndromes are more likely to have children and grandchildren and great-grandchildren who inherit variations of these syndromes. Scientists want to know if similar neurotransmitters or genetic mutations are involved. By conflating these conditions, Warner does a terrible disservice to the field of neurology and to the people — children, in particular — who are living (and living well) with “issues.”

    When I returned to Warner’s book, I was struck by her description of the process by which she initially got her book contract for UNTITLED.  Her editor and publisher were so taken by her as a personality and writer that they green-lighted her idea. I am curious to know if they took a similar approach to the manuscript.  Who reviewed it?  Did no one along the way object to Warner’s approach to “mental illness?” It’s hard for me to believe that anyone working in the fields of psychology, psychiatry, neurobiology, or education wouldn’t have challenged this manuscript.

    Last: by putting herself at the center of her book, Warner blurred the lines between insider and outsider.  She wanted to maintain distance and objectivity so that she could report stories that might be unfamiliar to many readers.  But she committed the cardinal sin of the outsider who wants to pass, by way of empathy, as an insider.  She made a careless, even harmful mistake that no insider, no one who actually lives with “these kids” and “these issues” would ever make. And while there is much to praise in Warner’s new book, I can’t forgive her. I hope, when the book goes to paperback, she will revisit the construction of her definition and make a few critically important changes.

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  • What’s the right answer?  A teenager with LD issues, especially organization, is struggling. How much to intervene?  I don’t have a right answer.  I know that “always” isn’t right.  And I know that “never” isn’t right, either.  It’s the in-between that’s so confusing to me right now.

    I’ve had a jam-packed week of these quandaries.  I don’t know whether I’ve done a good job or whether I need to make a sizable contribution to the kids’ lifetime therapy funds.  Maybe I’ll never know.

    Sam overslept and missed his ride to school Tuesday.  By 1, when I hadn’t heard from him, I began to worry.  He didn’t answer the home phone or his cell.  Lily hadn’t seen him at school. Neither had the dean of students.  I walked home quickly from work to check on him.  I was out of breath as I opened the back door into the kitchen.  There was Sam, looking as if he’d been tossed around in the dryer half dozen times, eating an ice cream sandwich.  ”What are you doing?” I barked.  ”Eating an ice cream sandwich,” he blinked. Sam got himself to school in time to get homework assignments and learn his penance: a 9 AM Saturday study hall for two hours. And if he has any more unexcused absences, he could lose credit or even be suspended.  Mark and I disagreed in our approach but ultimately spoke in one voice.  We told Sam everybody makes mistakes, we still love him (this of course elicited much eye rolling), that we believe in him so much that we know he can handle the lumps, and that we wanted to hear his thoughts about making sure he didn’t oversleep again.  Told him he’d have to re-schedule the community service he had signed up for. And let him know he’d be responsible for paying for the cabs he’d need to get him from the T station to school and back. This proved to be a more difficult part of the deal.  He lost his wallet two days later.

    Lily, meanwhile, has been struggling with a science class at school.  Large volume of reading. Hundreds of terms to learn.  Dyslexia and ADD don’t make this easy, but Lily was bound and determined to manage the material.  And she did very well on the test.  I spoke with the head of the skills center about what I thought was an inappropriate load and approach, she encouraged me to speak to the teacher, so I asked to talk. Awful conversation ensued.  The teacher was defensive and angry with me for intervening.  I knew it was going to be a bad interaction when she asked, near the beginning of the call, “Don’t you want your daughter to learn human physiology?”  My whole reason for getting involved was to ask the teacher to make it possible for Lily to really learn.  Lily’s advisor got involved.  We talked on the phone.  That was another bad conversation. And the result was that the advisor recommended Lily move down a level next year in science, even though the previous three weeks she’d been badgering Lily to sign up for the higher level of science.  I got Lily to schedule an appointment to speak with her advisor one-on-one.  They did talk, but I don’t know that Lily felt much better in the end.  I had tried to help.  I made things worse.  Should I have said and done nothing at all?  Maybe.

    And then Max.  In love with power struggles.   Auditions are in a week for his jazz orchestra.  He is barely preparing.  When I came home yesterday to find him parked, at 4 PM, in front of XBox Live (Oh, how I hate you, XBox Live), I erupted.  He beats a path to the basement to get onto his gizmo, when the dog’s not walked, the dishwasher isn’t emptied, and his trumpet lies silent.  ”I hate practicing,” he tells me.  ”It’s not fun.”  I sputter about “fun.”  I remind him that he has a real gift on this instrument.  I ask him if he just figures it’s easier not to practice and conclude that he’s not good enough to give it is all and fail.  ”I can’t even play the high notes,” he snarls.  ”The whole thing is stupid.”  ”Stupid” being the code word for a host of deep boy adolescent feelings, none of which is “stupid” in the least.  I am completely torn.  If I nag, will Max do even less?  If I say nothing, and he does nothing, is that irresponsible of me, since he has a hard time staying focused and dealing with long-term rewards?  If I try to engage him on what it means in life to tackle the “high notes,” will he put his fingers in his ears and hum? 

    I don’t want to helicopter parent.  I want my children to stand on their own two feet.  I want to believe in logical, natural consequences.  How much is LD?  How much is adolescence?  I try to decide on a case -to-case basis.  But sometimes I feel like I can’t find my way out of the forest bounded on one side by “always” and the other by “never.”

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